pau

PauDb

A database of all the Medical Records Systems in the world

View on GitHub

This is a public domain TreeBase of strongly typed meta data about all of the medical records used in the world.

View the Database as a CSV File

To add an entity, create a new file in the database folder. The available fields are currently listed in database/system.grammar.

Further Reading

Webpages

• https://en.wikipedia.org/wiki/Electronic_health_record
• https://www.cdisc.org/
• https://datasaveslives.eu/
• https://www.i-hd.eu/
• https://ohdsi.github.io/TheBookOfOhdsi/
• https://en.wikipedia.org/wiki/Clinical_Data_Interchange_Standards_Consortium
• https://en.wikipedia.org/wiki/Standard_for_Exchange_of_Non-clinical_Data
• https://www.cdisc.org/standards/foundational/adam
• http://www.openclinical.org/home.html
• https://thedigitalhealthsociety.com/
• http://www.ihi.org/communities/blogs/create-the-data-infrastructure-to-improve-health-equity

Books

• https://www.amazon.com/Person-Centered-Health-Records-HealthePeople-Informatics/dp/0387232826

Papers

• Characterizing the Source of Text in Electronic Health Record Progress Note. August 2017. doi:10.1001/jamainternmed.2017.1548
• January 2017. Examining the ‘Copy and Paste’ Function in the Use of Electronic Health Records https://doi.org/10.6028/NIST.IR.8166
• January 2017. Safe Practices for Copy and Paste in the EHR https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5373750/
• October 2015. Technical Evaluation, Testing, and Validation of the Usability of Electronic Health Records: Empirically Based Use Cases for Validating SafetyEnhanced Usability and Guidelines for Standardization. http://dx.doi.org/10.6028/NIST.IR.7804-1
• October 2015. Copy/Paste: Prevalence, Problems, and Best Practices. https://www.ecri.org/Resources/HIT/CP_Toolkit/CopyPaste_Literature_final.pdf
• 1. Appropriate Use of the Copy and Paste Functionality in Electronic Health Records.https://bok.ahima.org/PdfView?oid=300306
• Progress in the Enhanced Use of Electronic Medical Records: Data From the Ontario Experience. Jan 2017. doi: 10.2196/medinform.6928 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5343216/
• Electronic Health Records: Then, Now, and in the Future https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5171496/

Further Reading on Open Notes/Build/Bring Your Own Medical Records

• https://www.opennotes.org/
• https://www.va.gov/bluebutton/
• https://www.healthit.gov/how-to-get-your-health-record/
• https://www.cancer.net/blog/2016-08/3-steps-building-personal-medical-record
• https://www.consumerreports.org/health-information-technology/how-to-take-control-of-your-medical-record/